Tuesday, February 08, 2011


Click here for Lily's obituary, to appear in tomorrow's local papers.

Lily will have a viewing at Larkin Mortuary at 260 East South Temple at 12:30 on Thursday. There will be a graveside service to follow.

Thank you to everyone for their kind words, thoughts, prayers and comments. My phone has been out of commission (again, I know, I know) but it is back on today. We are enjoying time with family and getting lots of rest. Lily is ever close to our thoughts. We miss her little cry! Our home is so quiet at night without her humming oxygen concentrator, her clicking feeding pump, her beeping pulse oximeter, her little growling complaints. Cute sweet baby girl. We miss you.


Ashes said...

My heart aches for your sweet family. I love you.

Allison said...


Anonymous said...

What a beautiful tribute to Lily Elizabeth. You make me laugh and cry at the same time.

Shannon said...

All of the things that you mentioned in Lily's obituary are perfect! For one so tiny- you definitely made sure she got to experience all the things life has to offer. You are so wonderful and your girls are SO lucky to have you as their mom.

Irene said...

Erin, you are so amazing. I know you can get through this, you have so many people who love you and pray for you and your family. Sorry for what you are going through though, I can't even imagine.

thack said...

Absolutely beautiful, Erin. Oh sweet Lily! I wish I could be there. Love you! xoxo

Becky said...

You are continually in my thoughts and prayers. Again. I just can't believe there is an "again". Hang in there! I SO wish I could be there. xoxo

kecia said...

I don't know you, I just found your blog from Lacey Rugg, and I am sitting here with tears rolling down my face! That tribute to your daughter is beautiful and the post about being grateful was incredible!! You are one amazing family. I LOVE the header on your blog and what it says....I pray your family will get through this. We have 3 girls and our youngest as ds and we are in the process of adopting another 4 year old (same age as our girl with ds) with ds from ukraine. So your story was all too near to my heart with these sweet sweet angels!

kecia said...

One more thing....I was just looking back through your posts and was crying again at the temple sealing one (and noticed you live in slc like us). It made me so excited to get to do that when our new daughter gets home with us.

Bianca said...

I am saddened to hear about the passing of Lily. No one else can truly feel the sorrow that you bear. Although Lily's time with you was brief, she only felt love in her life. Lily has given you beautiful and lasting memories. May you find comfort and peace in the coming days, as you try to adjust to your new "normal" without your precious Lily. Sending tight (((hugs)))

With love and friendship,
"A Gift of Time" Parent

Lacey said...

I'm going to try and come tomorrow. If you don't mind me bringing the two munchkins!

Kristie and Roger said...

I don't know you, but you have changed my life. I have sat reading your sweet blog for the last hour.
I am a 56 year old grandma, who has had one child born with a birth defect. He was born with his bladder on the outside of his body and has had over 35 surgeries. From Seattle to Virginia. He grew up, went to BYU on a dance scholarship, played soccer and married the perfect woman. They adopted their first two kids, kid #3 is IVF and #4 is just ala natural. Their #3 kid has JRA and they struggle with that. She was diagnosed at 11 months and looks like she will have rough issues.
I thought, when will my trials end?
Then, this August, one of my 5 year old grandson's was diagnosed with Vanishing White Matter Leukodystrophy. It's Fatal.
The first thing my daughter said to me when she found out was, I am so thankful we are a Forever Family. So we went from a family with health issues, but people couldn't see to a family that will have to see my grandson suffer, be in a chair, feeding tube, all the things you have been though.
My daughter has three boys and this is the middle one. She is confused about if she should have another baby because there is a 90% chance this is genetic. My son in law works for the church, but the insurance had denied genetic testing. She doesn’t know if her other two boys will get it....or if another baby could have it.
Long story, I know.....but my point is, your attitude makes all the difference in the world. There are no limits to who can have all the trials.
Your love of your daughters is very clear to even a stranger on a blog. You are a very good woman, and those girls are lucky to have you for a mom.
I hope the service brings you peace. It's people like you who make people like me have hope.
May Heavenly Father's blessing pour down upon you today and the day's to come. I wish I knew you.
Kristie Liston

Jennifer said...

You are very strong! I saw you on the kidz blog, just wanted to leave my condolences. Thinking of you all. <3

Jen Butler said...

Thank you for sharing your family's story with the "blogging world" at such a difficult time. I can't even tell you how much you have inspired me with your faith, hope, gratitude, and eternal optimism. I admire you so much and really enjoy reading your blog. May you and your sweet family be blessed and comforted at this difficult time. You are all in my thoughts and prayers.
Jen Butler (one of Allison's BYU roomies)

Colleen said...

I'm so sorry to hear about the loss of your sweet baby. Your family will be in my prayers.

silver fortress said...

Dear Erin,
I'm so sorry to hear about the passing of your daughter Lily. I spent most of last night reading your blog and I want to thank you so much for sharing your story. I would imagine that you didn't set out to be an inspiration for others, but you truly are. I would imagine that you might not always feel brave, but I've rarely read of such courage. To be honest, I rarely pray - but I've found myself praying for you and your family. I wish you small comforts and warmth in your time of sorrow.

bt 5 , 13

April said...

You are continually in my heart... We have felt little Lily's light shine through your blog. Even though we never got to hold her-- we'll always hold her in our hearts.