good luck in surgery Lily. Prayers and love being sent your way.
Make things go great, Lily. You can do it!!
Hey Erin, I met you at April's house a few months ago when Becky was in town and stopped by to check on your sweet family. My heart goes out to you! I can't imagine how difficult these past few weeks have been for you and little Lily. I hope surgery goes smoothly and that Lily will be able to come home soon! Much love.
I ready love reading your blog. Your strength inspires me. I work in a NICU and I just spent a long night with a little one with an undiagnosed disorder. She was at first consider to have a 'lethal condition' but then was found to not to to have any apparent lethal anomalies, so a DNR was recinded. Last night, her condition worsened and we all struggled about the limits of care, given that we don't know for sure what her future holds. By the morning I was sure that she would not survive no matter what her diagnosis was. It is such a hard place to be in. I thought of you and your perspective on having a child with an unknowwn future.Thanks for sharing. I won't post my name due to hippa stuff.
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