Lily wasn't interested in the hard work of latching today, but she downed her bottle, so we are happy. I am working hard to meet her nutritional needs which are heightened due to the stress on her body and being on oxygen, so we will be supplementing with formula and hopefully we will be able to stick to bottles and not do a tube at this point.
Lily also had an echo cardiogram today. She does have an ASD, VSD and a PDA which hasn't closed at this point. Due to these findings we have stopped weaning her oxygen to help relax her vessels so perhaps the PDA will close on it's own. Currently it is causing pulmonary hypertension which was the health condition Charlotte had that we were so hopeful Lily would be able to avoid. However we have caught it very early and we can take measures to help keep it from progressing.
Thank you so much for continuing to follow us on this crazy journey. With Charlotte we planned the worst and had incredible joy when unexpectedly she did well and came home. This time, although we tried to deny it, we really expected Lily to be the picture of trisomy health and instead we are visiting her in the NICU. However we asked for another challenge, we asked for another hard gift, and I suppose we shouldn't be surprised we aren't being asked to repeat what we've already been through.
Day 2 after a c-section tends to be the worst pain-wise, so I'm looking forward to feeling even better--physically, mentally and spiritually tomorrow.