Tuesday, April 21, 2009
Welcome those from ICLW! I'm noticing people doing an intro post and thought I should do that, especially since what I posted last night is a bit heavy and sad.
My husband Zar and I have had two children, Charlotte and Ella. While pregnant with Charlotte we saw some funny stuff on ultrasound and eventually she was diagnosed with partial trisomy 16, partial monosomy 9. We did not expect her to live to term but she did and lived for more than 3 years. She was incredible and sweet and beautiful. She passed away two months ago today from a common respiratory virus, RSV.
Ella was born last October. She was a surprise pregnancy and we tried a CVS to find out if she is a carrier of the condition that led to Charlotte's diagnosis. The test failed but she looked fine on ultrasound, and I felt good about her health. We still don't know her carrier status but she is beautiful, healthy and has saved our sanity since we lost Charlotte.
We are currently looking into IVF with pre-diagnosis done on the embryos. I don't feel comfortable just trying for another child and hoping it turns out okay, and since knowing Charlotte I could never terminate a pregnancy that may turn out like her. We are waiting to find out what percentage of Zar's swimmers are normal or balanced compared to unbalanced. We are also open to adoption. We are excited but very nervous.
We are just learning to adjust to our new status as a "normal" family without a special needs child. It's hard and strange and we want our sweet girl back. I don't know what we would do without Ella. I am still grieving pretty hard but thank goodness for good friends, family and faith. Just taking it a day at a time. Oh and please excuse the above picture, I'd just given birth. Sorta. Surgically, rather.