Monday, February 23, 2009


Everything is so much easier now yet so much harder.

I cleared Charlotte's room of her "special things." Goodbye IV pole, feeding bags, syringes, fan, oximeter, tape, tylenol, purifier and such. She doesn't need them. Her room looks beautiful with the bed made up with her last blanket, pink flowers on the nightstand and the window open wide.

I had to tell Make a Wish that Charlotte had made her wish and it was to go home. I'm sure Heaven Disneyworld is incredible. And she can run from ride to ride.

Thank goodness for Ella and her sweet smile. Thank goodness our house full of little girl things can stay that way.


6 comments:

katherine said...

emily told me about your sweet charlotte. your family has been in our thoughts and prayers. i only met your sweet girl a couple times, but she had an amazing spirit about her and really touched everyone she met. thanks for sharing her, and your thoughts and experiences with the rest of us. take care.

Alex Drake said...

Heaven Disney World! That's awesome. I'm sure she's having a blast. Just imagine it. riding the teacups as much as you want and NEVER getting sick.

Amanda said...

I have never seen that picture of Charlotte. She looks so cute in it. I know she is having a great time running around and laughing.

Shannon said...

Heaven Disney World does sound incredible!I am so sad that Boo missed the chance to do her wish- but so happy because we know that she is able to do whatever she wants where she is. You're amazing Erin- you and Zar have handled all of this with so much grace and dignity. I love you- and think you are amazing.

Michelle said...

Erin- you've never met me but I know a lot about your little Charlotte from Amanda. She has shared Charlotte's story with me from day one and I just want you to know that even though I haven't met you, I know you are an incredible woman and mother. I also know that Charlotte was an amazing little girl and is now one of the most beautiful angels in Heaven. I'm sending my love and prayers your way as you, Zar, Ella and most especially, Charlotte are in my thoughts and heart.

S Palfreyman said...

That is one things that made me so sad for your little family..Never expereincing Disney World together. Here we live in Florida and go all the time. I am so sad that it didn't work out. Though I will agree Disney World is Heaven I am sure is so much better!!! If you do ever want to come and I still live here please let me know since my husband works for the mouse. I am glad you read my post. Though I never thought you would, I am glad you did. I think of you like a Mother Bear, strong and willing to do your all for you little ones. You amaze me..and that you are still posting. I hope this summer I am able to see you and tell you personally how much I admire you and have grieved with you though miles apart.