I just want everyone to know that I use this blog to decompress and deal with stuff that happens to me. It's sometimes quite dramatic and maybe difficult to read about living with a seriously ill child, but it really really helps me to write about it.
Please know that we are fine, that we we have been dealing with stuff like this for more than three years, that we aren't traumatized or falling apart. Scary experiences come with parenthood, especially special needs parenthood, but it's worth the time we get with our daughter. So please don't worry about me or Charlotte. 95% of the time she is the happiest girl on earth. Her life is fragile, but all life is.